April 29, 2012

I didn't realize how long it has been.  It has been since October since I have posted anything.   After the pagent.   The day after Christmas Zachary ended up in the hospital for his blood sugar level.  He said his tummy was hurting and he couldn't walk.  I poked his finger and it was 43.  It should be 70 or higher.  So I poked it again because I didn't believe I did it right.   Well I rushed him to the hospital and they admitted him for 2 full days.  They found out absolutely nothing lol.   They ran all sorts of tests and even brought in Metabolic Dept.  They tried to starve him and get his blood sugar to drop again so they could take more tests but it didn't work.  So we came back in January and did more blood work to see if he had something wrong with his liver call glycogen storage disease.  I didn't believe he had it but figured better to rule it out then to always wonder.    Let's see othen than that the only other hospital visit was when he fell off the bed backwards.   I rushed him to the hospital and they did a CT Scan and said everything was fine.  

This year is real tough.   We have started behavioral therapy everyday an hour a day mon thru fri and saturday for 2 1/2 hours.  Soon I will try and put him in Karate and possibly bowling.  I am hoping with the Karate and behavioral therapy it will help with him bouncing off the walls.  So when he goes to school in August he will be able to manage himself better.   I am trying to put him in a regular class hopefully with an AIDE.  He is really smart and reads and adds already, so I believe he is ready for 1st grade but emotionally not so sure.  So needs a lot of redirection and attention span is like the Autistic Doc said "He has an attention span of a flea".   LOL.   So true.    He will get his first live vaccine in July for Chicken Pox and not too sure if I will follow with MMR.  I figure with the Autism I don't want to make it any worse witht that shot if there is any truth to autism and then shot.  

Zachary has come so far since 3 years old.   Just alone with his talking since almost 2 years ago.  He speaks like a 7 year old.  He still has feeding difficulties and muscle issues.  But he is thriving more and more everyday.  He has truly been a miracle baby.  From going from not exactly knowing how bad he would be to this talkative little monster.  He has his heart defects still and we will continue to watch those.  But overall he has made extremely miraculous progress.    I have been lucky to have the teachers and therapists I have had.  The school teacher he has that comes to the home has been a miracle for Zachary.  Without her Zachary would not have come this far with his talking.  I do credit that to her completely. 

We are coming up this June on Zachary's 6th Annual Bowlthon.  This year the prizes are phenomenal!!!  The best prizes yet.