Zachary has done a wish with MAKE-A-WISH Foundation.
Unfortunately, they don't grant wishes that require permits.
Zachary's wish was to have a room built on the house of his own. Zachary can't be around other kids or go to playgrounds or play with other kids toys. So he wanted to have his own space where his therapists and teachers could have their sessions in a good area with lots of room. This way Zachary can have all his toys in one room and also his school stuff in the same. I was hoping maybe we could get enough donations that we can get the room built for him and then maybe MAKE-A-WISH could furnish the room for him. I would appreciate any help!!!
Friday, March 19, 2010
Zachary's 4th Annual Bowl-a-thon
This year I am doing the bowl-a-thon a little earlier. I am having the bowl-a-thon on
June 6, 2010
Oak Tree Lanes
990 N. Diamond Bar Blvd.
Diamond Bar, Ca 91765
3Pm to 5Pm
$20.00 per person
2 hours of bowling and shoes
1 Large 1 topping pizza and pitcher of soda PER LANE
There will be a raffle again this year and I will also have a 50/50.
I will start selling tickets early this year and also at the bowl-a-thon.
ALL PROCEEDS GO TO THE AMERICAN HEART ASSOCIATION WWW.OCHEARTWALK.COM
June 6, 2010
Oak Tree Lanes
990 N. Diamond Bar Blvd.
Diamond Bar, Ca 91765
3Pm to 5Pm
$20.00 per person
2 hours of bowling and shoes
1 Large 1 topping pizza and pitcher of soda PER LANE
There will be a raffle again this year and I will also have a 50/50.
I will start selling tickets early this year and also at the bowl-a-thon.
ALL PROCEEDS GO TO THE AMERICAN HEART ASSOCIATION WWW.OCHEARTWALK.COM
Sunday, March 7, 2010
Cleft Craniofacial Team
We seen the 7 doctors at Choc's Cleft Craniofacial Team. It was very enlightening.
The ENT which I will not let touch my son wants to take out his Adnoids. Which is what my current ENT told me would happen. I will refer Zach back to my ENT due to the Cleft Craniofacial Teams ENT seems to give wrong answers and not know much.
The Genetics Doctor stated that if I want to have an assessment done for Autism to take him to OC4Kids. I called and they stated they only handle people who live in Orange County. Nevermind, all of Zachary's doctors are at CHOC in Orange County. Then I tried Gottschalk in Irvine and they don't take my insurance. So what is someone to do??? My other option is go to Casa Colina and pay $500.00 for initial visit... I don't know about anyone else, but I don't have $500.00 in cash... So this is on HOLD.
The Speech Pathologist stated Zachary has Apraxia, but the Genetics Doctor says he doesn't. So tell me which is it???? Who knows????? She told me I need to find a Speech Therapist to come into the home. I've been looking, but not successful...
The Orthodontist and the Plastic Surgeon hmmmmm this is where Zachary's surgeries will be. First of all, we need to do a sleep study... If Zachary has apnea then they will immediately do surgery and pull out his jaw. This will be done sooner or later but if he has apnea will be much sooner.. They would put something in his jaw and I would have to turn once a day. This supposingly won't hurt him, but I am sure it will kill me... Eventually, around 8 or so, he will have his pallet pulled down and his submucosal cleft fixed and everything wrong with his mouth corrected. These are the surgeries which will be a challenge.
The reasons I don't like this clinic is in the report they sent me states wrong things. I don't know if this normal but they stated post surgery for a VSD. I believe that is Ventricle Septal Defect which my son never had surgery for. So this bothers me a little. They state a couple other things which aren't really big but bothersome.
I will update soon. Getting settled soon in our new place, so I will able to update more often.. Take care..
The ENT which I will not let touch my son wants to take out his Adnoids. Which is what my current ENT told me would happen. I will refer Zach back to my ENT due to the Cleft Craniofacial Teams ENT seems to give wrong answers and not know much.
The Genetics Doctor stated that if I want to have an assessment done for Autism to take him to OC4Kids. I called and they stated they only handle people who live in Orange County. Nevermind, all of Zachary's doctors are at CHOC in Orange County. Then I tried Gottschalk in Irvine and they don't take my insurance. So what is someone to do??? My other option is go to Casa Colina and pay $500.00 for initial visit... I don't know about anyone else, but I don't have $500.00 in cash... So this is on HOLD.
The Speech Pathologist stated Zachary has Apraxia, but the Genetics Doctor says he doesn't. So tell me which is it???? Who knows????? She told me I need to find a Speech Therapist to come into the home. I've been looking, but not successful...
The Orthodontist and the Plastic Surgeon hmmmmm this is where Zachary's surgeries will be. First of all, we need to do a sleep study... If Zachary has apnea then they will immediately do surgery and pull out his jaw. This will be done sooner or later but if he has apnea will be much sooner.. They would put something in his jaw and I would have to turn once a day. This supposingly won't hurt him, but I am sure it will kill me... Eventually, around 8 or so, he will have his pallet pulled down and his submucosal cleft fixed and everything wrong with his mouth corrected. These are the surgeries which will be a challenge.
The reasons I don't like this clinic is in the report they sent me states wrong things. I don't know if this normal but they stated post surgery for a VSD. I believe that is Ventricle Septal Defect which my son never had surgery for. So this bothers me a little. They state a couple other things which aren't really big but bothersome.
I will update soon. Getting settled soon in our new place, so I will able to update more often.. Take care..
Subscribe to:
Posts (Atom)
