This month is going to be a long one. Zachary has many appts this month. Zachary will meet with a nurse from Regional Center due to his swallowing/choking problems. He will also need to get blood drawn to check his numbers. He will go to the Immune Doctor to see how he is doing with his Tcells. Zachary will see a team of 7 Doctors/Professionals at the Cleft Craniofacial Team again to see when they will scope him. Unfortunately, it will be at Childrens Hospital of Orange since the Dr. Elmendorf kicked Zachary out of the clinic for me reporting his nurse for not doing her job.
Zachary will have to re-establish a primary doctor again due to his first doctor Dr. Koffman had to undergo a bone marrow transplant. Thankfully, he is doing really well. We switched to Dr. Longknecker and then he disappeared and finally found out he left St. Jude and is opening his own practice. So we went back to St Jude in Diamond Bar and went to Dr. Celio. Dr. Celio has treated Zachary in the past and is a great doctor... I was just worried if he wanted to take on this case. Hopefully he is up to the challenge...
Zachary will be relocating most likely this month... I have lost the home to foreclosure and am not able to save it. With no child support coming in and only being able to work 30 hours a week due to Zachary's issues, it makes it difficult to do anything about it. But he will adjust he is still young.
I am looking forward to a better year in 2010.. Hopefully this is the year that will turn things around.!!!!
Tuesday, January 12, 2010
Saturday, January 2, 2010
December 09
This month has been lots of sickness. Zachary has had many colds this month, more than normally. Zachary had his flu shot and 2 h1n1 shots. Who knows if that is why Zachary has been sick so many times.
Zachary was discharged from the new neurologist. She seen Zachary for a whole 5 minutes and had this duck puppet and moved him around so Zachary could follow it and then she said okay I am discharging him. I inquired about autism because of all his autistic traits and she stated he is not autistic he interacts and looks at you, so he is not autistic. Basically shut me down and didn't want anymore questions.
Zachary will face other issues in 2010. He will be scoped to find out what is not working in his throat and then we can proceed to see why it isn't working and if surgery will help it. We are still looking for help in getting him medically based speech therapy since Loma Linda pulled the garbage on him they did. How do you not treat a child because someone makes a complaint on your nurse. That is a horrible person let alone a doctor.
Zachary will see a plastic surgeon again this year regarding his chin and soft pallet. We will see how this will go this time.
With us losing our place this month 1/10 we will see how Zachary adapts to the change. With not having a place for all his stuff and school stuff for himself will be kinda interesting to see how he reacts. I have asked places if anyone knows of any charities to see if we can get help in reverting my mom's garage into a room or making the patio into a room. Don't know if we will get help but hopefully god willing.. People get help all the time even when they don't need it. Why is it when you really need the help you can't get it?
I can't get social security for my disabled son because I make too much money. When I just went back to work and got one pay check they gave me $75.00. I don't understand when you really need help it just seems like you don't get it. But these people that do everything crooked get all the help they need. They lie and tell them things that aren't true and never get caught. I try and do everything honestly and get screwed everytime!!
Zachary was discharged from the new neurologist. She seen Zachary for a whole 5 minutes and had this duck puppet and moved him around so Zachary could follow it and then she said okay I am discharging him. I inquired about autism because of all his autistic traits and she stated he is not autistic he interacts and looks at you, so he is not autistic. Basically shut me down and didn't want anymore questions.
Zachary will face other issues in 2010. He will be scoped to find out what is not working in his throat and then we can proceed to see why it isn't working and if surgery will help it. We are still looking for help in getting him medically based speech therapy since Loma Linda pulled the garbage on him they did. How do you not treat a child because someone makes a complaint on your nurse. That is a horrible person let alone a doctor.
Zachary will see a plastic surgeon again this year regarding his chin and soft pallet. We will see how this will go this time.
With us losing our place this month 1/10 we will see how Zachary adapts to the change. With not having a place for all his stuff and school stuff for himself will be kinda interesting to see how he reacts. I have asked places if anyone knows of any charities to see if we can get help in reverting my mom's garage into a room or making the patio into a room. Don't know if we will get help but hopefully god willing.. People get help all the time even when they don't need it. Why is it when you really need the help you can't get it?
I can't get social security for my disabled son because I make too much money. When I just went back to work and got one pay check they gave me $75.00. I don't understand when you really need help it just seems like you don't get it. But these people that do everything crooked get all the help they need. They lie and tell them things that aren't true and never get caught. I try and do everything honestly and get screwed everytime!!
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